the autonomy of people with intellectual disability: a literature review
DOI:
https://doi.org/10.5902/1984686X68742Keywords:
People with disabilities, Intellectual Disability, AutonomyAbstract
The autonomy of people with disabilities is a relevant issue for the fields of education, psychology and human rights. This paper characterizes theoretical and empirical studies that guide a discussion on the autonomy of people with intellectual disabilities. A narrative literature review covering 18 articles published between 2010 to 2020 is presented. The analyzed works were organized into three categories: theoretical perspectives, target audience of the study, and the concept of autonomy. Results of the present review shown that two theoretical frameworks were pointed out: Disability Studies and the Self-Determination Theory. The articles analyzed gave relevance to the perspective of the interdependencies to support the discussion on autonomy. Therefore, it is argued that the relationships of care and support play a fundamental role in the development and encouragement of the autonomy of people with intellectual disabilities. It was concluded that, in the recent years, the Disability Studies perspective on the interdependencies have been fostering the debate on the autonomy of people with intellectual disabilities, in national and international research.
Downloads
References
BARBOSA-FOHRMANN, Ana Paula; ARAÚJO, Luana Adriano. As autonomias das pessoas com deficiências intelectuais e cognitivas graves. In. Teixeira, Ana Carolina Brochado; Menezes, Joyceane Bezerra de. Gênero, vulnerabilidade e autonomia Gênero, vulnerabilidade e autonomia: repercussões jurídicas. Indaiatuba, SP: Editora Foco, 2020. Kindle Edition.
Bissoto, M. L. (2014). Deficiência intelectual e processos de tomada de decisão: estamos enfrentando o desafio de educar para a autonomia? Educação Unisinos, 18(1), 3–12. doi: 10.4013/edu.2014.181.01
BJÖRNSDÓTTIR, Kristín; STEFÁNSDÓTTIR; STEFÁNSDÓTTIR, Guðrún Valgerður. Ástríður. “It’s my life”: Autonomy and people with intellectual disabilities. Journal of Intellectual Disabilities, v. 19, n. 1, p. 5–21, 2015. Disponível em: <https://doi.org/10.1177/1744629514564691>. Acesso em: 19 de abr. 2021.
BJÖRNSDÓTTIR, Kristín; STEFÁNSDÓTTIR, Ástríður; STEFÁNSDÓTTIR, Guðrún Valgerður. People with Intellectual Disabilities Negotiate Autonomy, Gender and Sexuality. Sexuality and Disability, vol. 35, no. 3, p. 295–311, 2017. Disponível em: <https://doi.org/10.1007/s11195-017-9492-x>. Acesso em: 29 de jan. 2021.
Brock, M. E., Biggs, E. E., Carter, E. W., Cattey, G. N., & Raley, K. S. (2016). Implementation and Generalization of Peer Support Arrangements for Students With Severe Disabilities in Inclusive Classrooms. Journal of Special Education, 49(4), 221–232. doi: 10.1177/0022466915594368
BROCK, Matthew E; SCHAEFER, John M; SEAMAN, Rachel L. Self-Determination and Agency for All: Supporting Students with Severe Disabilities. Theory Into Practice, vol. 59, no. 2, p. 162–171, 2020. Disponível em: <https://doi.org/10.1080/00405841.2019.1702450>. Acesso em: 29 de jan. 2021.
CASTILLO, Francisco Gusmán; MARTÍN, Mario Toboso; CABRERO, Javier Romañach. Fundamentos éticos para la promoción de la autonomía: hacia una ética de la interdependencia. Alternativas, no 17, p. 45-61, 2010. Disponível em: <https://doi.org/10.14198/ALTERN2010.17.3>. Acesso em: 19 de abr. 2021.
CONTINO, Martín. La autonomía en el territorio de la discapacidad. Revista Crítica, n. 3, p. 12-27, 2017. Disponível em: <https://criticapsicologia.unr.edu.ar/wp-content/uploads/2018/12/La-autonomia-en-el-territorio-de-la-discapacidad-Contino.pdf >. Acesso em: 29 de jan. 2021.
Davy, Laura. Philosophical inclusive design: Intellectual disability and the limits of individual autonomy in moral and political theory. Hypatia, 30(1), 132–148. 2015. Disponível em:<https://doi.org/10.1111/hypa.12119>. Acesso em: 19 de abr. 2021.
DAVY, Laura. Between an ethic of care and an ethic of autonomy: negotiating relational autonomy, disability, and dependency. Angelaki Journal of the Theoretical Humanities, v. 24, n. 3, p. 101–114, 2019. Disponível em: <https://doi.org/10.1080/0969725X.2019.1620461>. Acesso em: 19 de abr. 2021.
DOREN, Bonnie; KANG, Hyun Ju. Autonomy, self-realization, and self-advocacy and the school-and career-related adjustment of adolescent girls with disabilities. Career Development and Transition for Exceptional Individuals, v. 39, n. 3, p. 132–143, 2016. Disponível em: <https://doi.org/10.1177/2165143415574875>. Acesso em 19 de abr. 2021.
DOWLING, Sandra. et al. Managing relational autonomy in interactions: People with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, vol. 32, no. 5, p. 1058–1066, 2019. Disponível em: <https://doi.org/10.1111/jar.12595>. Acesso em: 29 de jan. 2021.
DUARTE, Cintia Perez; VELLOSO, Renata de Lima. Linguagem e comunicação de pessoas com deficiência intelectual e suas contribuições para a construção da autonomia. Inclusão Social, v. 10, n. 2, p. 88–96, 2017. Disponível em:<http://revista.ibict.br/inclusao/article/view/4034>. Acesso em: 19 abr. 2021.
FRIELINK, Noud; SCHUENGEL, Carlo; EMBREGTS, Petri J. C. M. Autonomy support, need satisfaction, and motivation for support among adults with intellectual disability: Testing a self-determination theory model. American Journal on Intellectual and Developmental Disabilities, v. 123, n. 1, p. 33–49, 2018. Disponível em:<https://doi.org/10.1352/1944-7558-123.1.33>. Acesso em 19 de abr. 2021.
GALLEGO, Diego Carmona. Autonomía e interdependencia. La ética del cuidado en la discapacidad. Revista Humanidades, v. 10, n. 2, p. 1-18, dez. 2020. Disponível em: https://doi.org/10.15517/h.v10i2.41154>. Acesso em: 29 de jan. 2021.
GAUDENZI, Paula; ORTEGA, Francisco. Problematizando o conceito de deficiência a partir das noções de autonomia e normalidade. Ciênc. saúde coletiva, [online], v. 21, n. 10, p. 3061-3070, out. 2016. Disponível em: <https://doi.org/10.1590/1413-812320152110.16642016>. Acesso em: 29 de jan. 2021.
GILMORE, Linda. et al. Understanding Maternal Support for Autonomy in Young Children with Down Syndrome. Journal of Policy and Practice in Intellectual Disabilities, vol. 13, no. 2, p. 92–101, 2016. Disponível em: <https://doi.org/10.1111/jppi.12163>. Acesso em: 29 de jan. 2021.
HARRIS, James C. Developmental Perspective on the Emergence of Moral Personhood. In: KITTAY, Eva Feder; CARLSON, Licia. Cognitive Disability and Its Challenge to Moral Philosophy. Metaphilosophy. 2010. p. 55-73.
MAULEON, Xabier Etceberria. Autonomía y Decisiones de Representación/Sustitución en Personas con Discapacidad Intelectual. Perspectiva Ética. Siglo Cero: Revista Española sobre Discapacidad Intelectual, v. 47, n. 1, p. 55-66, 2016. Disponível em: <https://doi.org/10.14201/scero201615566>. Acesso em: 19 de abr. 2021.
MOREIRA, Flavia Daniela dos Santos. PACT: Programa de comunicação alternativa tátil para crianças com deficiência múltipla sensorial. Rio de Janeiro: Instituto Benjamin Constant, 256 p. 2021.
PEDRINELLI, Verena Junghähnel. et al. A bioecological perspective of human development on autonomy of an athlete with intellectual disability. Revista de Psicologia del Deporte, v. 27, n. 4, p. 9–14, 2017. Disponível em: <https://psycnet.apa.org/record/2018-28945-001>. Acesso em: 19 de abr. 2021.
SÁ, Miriam Ribeiro Calheiros de. et al. De toda maneira tem que andar junto: ações intersetoriais entre saúde e educação para crianças vivendo com a síndrome congênita do vírus Zika. Cadernos de Saúde Pública, n. 12, v. 35, 2019. Disponível em: <https://doi.org/10.1590/0102-311x00233718>. Acesso em: 29 de jan. 2021.
VENCATO, Letiara da Silva; WENDLING, Maria Isabel. A Percepção da Família sobre o Desenvolvimento da Autonomia nas Pessoas com Deficiência Intelectual. Revista Universo Psi. v. 1, n. 1, 2019. Disponível em: <https://seer.faccat.br/index.php/psi/article/view/1337/839>. Acesso em: 19 de abr. 2021.
WANG, Katie; DOVIDIO, John F. Disability and Autonomy: Priming Alternative Identities. Rehabiliiation Psychology, v. 56, n. 2, p. 123-127, 2011. Disponível em: <https://doi.org/10.1037/a0023039>. Acesso em: 19 de abr. 2021.
KITTAY, Eva Fender; CARLSON, Licia; Introduction: Rethinking Philosophical Presumptions in Light of Cognitive Disability. In: KITTAY, Eva Feder; CARLSON, Licia. Cognitive Disability and Its Challenge to Moral Philosophy. Metaphilosophy. 2010. p. 1-27.
KITTAY, Eva Feder; JENNINGS, Bruce; WASUNNA, Angela A. Dependency, Difference and the Global Ethic of Longterm Care. Journal of Political Philosophy, v. 13, n. 4, p. 443–469, 14 Nov. 2005. Disponível em: <https://doi.org/10.1111/j.1467-9760.2005.00232.x>. Acesso em: 29 de jan. 2021.
Published
How to Cite
Issue
Section
License
Copyright (c) 2023 Revista Educação Especial
This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.
Declaration of originality
We declare that all articles present in the journal Revista Educação Especial (UFSM) are originals and were not submitted for publishing on any other publication, as a whole or a fraction. We also declare that, after being published by Revista Educação Especial (UFSM), a paper will not be submitted to another journal within two years. After this time, our journal transfers the publishing rights to the authors, with a permit granted by the Editorial Council.
We also acknowledge that the originals’ submission to Revista Educação Especial (UFSM) implies on a transference of copyright for physical and digital publishing to the journal. In case of noncompliance, the violator will receive sanctions and penalties predicted by the Brazilian Copyright Protection Law (n. 9610, dated 19/02/98).