Scientific production on ableism in higher education: an integrative literature review
DOI:
https://doi.org/10.5902/1984686X68635Keywords:
Ableism, Pathologization., Higher educationAbstract
Understanding how ableism is reproduced in higher education is essential to remove barriers to accessing knowledge and to guarantee the social participation of people with disabilities in this space. This research aimed to characterize the scientific production regarding ableism in higher education in terms of conceptual perspectives, the main implications for people with disabilities, and the elements that support the construction of anti-ableist practices. The information was obtained through an integrative literature review covering 36 articles available in the Scopus, PsycInfo, Web of Science, One File, and ERIC databases, published between 2000 and 2020. The findings were analyzed using a protocol of review prepared by the authors. The results were organized into three categories: a) conceptual perspectives on ableism; b) reproduction of ableism in higher education and; c) contributions to the construction of anti-ableist practices. It was identified that ableism is institutionalized in higher education and corroborates the pathologization and medicalization of people with deviant corporalities from the normative standard. The construction of anti-ableist practices demands critical analysis of the capacitation narratives, the incorporation of the intersectional perspective, and the commitment to the elimination of barriers and the participation of people with disabilities. Finally, the relevance of incorporating the category ableism in the production of knowledge, training of professionals working in higher education and in Brazilian educational policies are highlighted.
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ABES, Elisa S; WALLACE, Michelle M. “People see me, but they don’t see me”: an intersectional study of college students with physical disabilities. Journal of College Student Development, v. 59 n. 5, p. 545–562, Set. 2018. Disponível em: <https://doi.org/10.1353/csd.2018.0052>. Acesso em: 20 jan. 2021.
BÊ, Ana. Ableism and disablism in higher education: the case of two students living with chronic illnesses. Alter, v. 13, n. 3, p. 179–191, Ago. 2019. Disponível em: <https://doi.org/10.1016/j.alter.2019.03.004>. Acesso em: 20 jan. 2021.
BIALKA, Christa S., et al. Breaking barriers and building bridges: understanding how a student organization attends to the social integration of college students with disabilities. The Journal of Postsecondary Education and Disability. Huntersville, v. 30, n. 2, p. 157–172, 2017. Disponível em: <https://eric.ed.gov/?id=EJ1153574>. Acesso em: 20 jan. 2021.
BLACKMORE, Paul. Prestige in academic life: excellence and exclusion. London e New York: Routledge, 2016.
BLOCKMANS, Inge G. E. “Not wishing to be the white rhino in the crowd”: disability-disclosure at university. Journal of Language and Social Psychology, Belgium, v. 34, n. 2, p. 158–180, 2015. Disponível em: <https://doi.org/10.1177/0261927X14548071>. Acesso em: 20 jan. 2021.
BRCKALORENZ, Allison, FASSETT, Kyle T. & HURTADO, Sarah S. Supporting LGBQ+ students with disabilities: exploring the experiences of students living on campus. The Journal of College and University Student Housing. v. 46 n. 3, p. 78-91, 2020. Disponível em: <https://eric.ed.gov/?id=EJ1250900>. Acesso em: 20 jan. 2021.
BROWN, Nicole; LEIGH, Jennifer. Ableism in academia: where are the disabled and ill academics? Disability and Society. London, v. 33, n. 6, p. 985–989, Abr. 2018. Disponível em: <https://doi.org/10.1080/09687599.2018.1455627>. Acesso em: 20 jan. 2021.
BROWN, Nicole. Theorizing ableism in academia. In: BROWN, Nicole e LEIGH, Jennifer. Ableism in Academia. London: UCL Press, 2020. p. 1-10.
BOCK, Geisa, KEMPFER, Letícia, GESSER, Marivete e NUERNBERG, Adriano Henrique. Desenho Universal para a Aprendizagem: a Produção Científica no Período de 2011 a 2016. Revista Brasileira de Educação Especial. Baurú, v. 24, n. 1, p. 143-160, jan. 2018. Disponível em: <https://doi.org/10.1590/S1413-65382418000100011>. Acesso em: 20 jan. 2021.
BOLT, David. Disability and the rhetoric of inclusive higher education. Journal of Further and Higher Education. London, v. 28, n. 4, p. 353–358, Nov. 2004. Disponível em: <https://doi.org/10.1080/0309877042000298849>. Acesso em: 20 jan. 2021.
BOLT, David. Enabling the classroom and the curriculum: higher education, literary studies and disability. Journal of Further and Higher Education. London, 41(4), 556–565, Mar. 2016. Disponível em: <https://doi.org/10.1080/0309877X.2015.1135888>. Acesso em: 20 jan. 2021.
BRASIL. Ministério da Educação. Documento orientador Programa Incluir - Acessibilidade na educação superior SECADI/SESU. 2013. Disponível em: < http://portal.mec.gov.br/index.php?option=com_docman&view=download&alias=13292-doc-ori-progincl&category_slug=junho-2013-pdf&Itemid=30192>. Acesso em: 21 jan. 2021.
BRASIL. Secretaria Geral. Lei Brasileira de Inclusão da Pessoa com Deficiência (Estatuto da Pessoa com Deficiência). Brasília, DF, 2015. Disponível em: <http://www.planalto.gov.br/ccivil_03/_Ato2015-2018/2015/Lei/L13146.htm>. Acesso em: 24 jul. 2021.
BULK, Laura Yvonne, et al. “We are not anything alike”: marginalization of health professionals with disabilities. Disability & Society. London, v. 32, n.5, p. 615–634, abr. 2017. Disponível em: <https://doi.org/10.1080/09687599.2017.1308247>. Acesso em: 20 jan. 2021.
CADWALLADER, Jessica Robyn. Stirring up the sediment: The corporeal pedagogies of disabilities. Discourse, v. 31, n. 4, p. 513–526, set. 2010. Disponível em: <https://doi.org/10.1080/01596306.2010.504366>. Acesso em: 20 jan. 2021.
CAMPBELL, Fiona Kumari. Inciting Legal Fictions: ‘Disability's Date with Ontology and the Ableist Body of the Law. Griffith Law Review, London, v. 10, n.1, p. 42-62, 2001. Disponível em: <http://hdl.handle.net/10072/3714>. Acesso em: 18 nov. 2019.
CAMPBELL, Fiona Kumari. Exploring internalized ableism using critical race theory. Disability & Society, v. 23, n. 2, p. 151–162, mar. 2008. Disponível em: <https://doi.org/10.1080/09687590701841190>. Acesso em: 20 jan. 2021.
CASEMENT, Sue; CARPIO DE LOS PINOS, Carmen; FORRESTER-JONES, Rachel. Experiences of university life for students with Asperger’s Syndrome: a comparative study between Spain and England. International Journal of Inclusive Education, v. 21, n. 1, p. 73–89, 2017. Disponível em: <https://doi.org/10.1080/13603116.2016.1184328>. Acesso em: 22 jan. 2021.
CHIANG, Evelyn S. Disability cultural centers: How colleges can move beyond access to inclusion. Disability & Society. London, v. 35, n. 7, p. 1183–1188, Out. 2019. Disponível em: <https://doi.org/10.1080/09687599.2019.1679536>. Acesso em: 20 jan. 2021.
CHINYOWA, Kennedy. A Technology of the self and the other: A case study on disabled body politics among university students. International Journal of Disability, Development and Education. p. 1–10, Jul. 2020. Disponível em: <https://doi.org/10.1080/1034912X.2020.1779916>. Acesso em: 20 jan. 2021.
COOPER, Harris. The integrative research review: a systematic approach. Beverly Hills: Sage, 1984, 143p.
COX, Bradley E. et al. Navigating challenges to facilitate success for college students with autism. Journal of Higher Education, v. 92. n. 2, p. 25-278, Ago. 2020. Disponível em: <https://doi.org/10.1080/00221546.2020.1798203>. Acesso em: 20 jan. 2021.
DIAS, Adriana. Por uma genealogia do capacitismo: da eugenia estatal a narrativa capacitista social. In: I SIMPÓSIO INTERNACIONAL DE ESTUDOS SOBRE A DEFICIÊNCIA SEDPCD/DIVERSITAS/ USP, 2013. Anais do I Simpósio Internacional de Estudos sobre a Deficiência SEDPcD/Diversitas/USP. São Paulo, p. 1-14.
EHLINGER, Emily; ROPERS, Rebecca. “It’s All About Learning as a Community”: Facilitating the Learning of Students with Disabilities in Higher Education Classrooms. Journal of College Student Development, Baltimore, v. 61, n. 3, 333–349, Mai. 2020. Disponível em: <https://doi.org/10.1353/csd.2020.0031>. Acesso em: 20 jan. 2021.
FERNANDEZ, Stephen. Making space in higher education: disability, digital technology, and the inclusive prospect of digital collaborative making. International Journal of Inclusive Education, p. 1375-1390, 2020. Disponível em: <https://doi.org/10.1080/13603116.2019.1610806>. Acesso em: 20 jan. 2021.
FREEDMAN, Justin E.; DOTGER, Benjamin H.; SONG, Yosung. Encountering ableism in the moment: how university students discuss accommodations with faculty members. Critical Education, v. 11, n. 15, p. 21-37, 2020. Disponível em: < https://ices.library.ubc.ca/index.php/criticaled/article/view/186504>. Acesso em: 20 jan. 2021.
GESSER, Marivete; BLOCK, Pamela; MELLO, Anahi Guedes de. (2020). Estudos da Deficiência: interseccionalidade, anticapacitismo e emancipação social. In: GESSER, Marivete; BÖCK, Geisa; KEMPFER, Letícia; LOPES, Paula Helena. (Org.). Estudos da Deficiência: interseccionalidade, anticapacitismo e emancipação social. Curitiba: CRV., 2020, p. 17-35.
GOMES, Elihab Pereira; et. al. Processos de inclusão de pessoas com deficiência no Ensino Superior: Uma revisão sistemática. Research, Society and Development. Itajubá, v. 10, n. 8, p. 1-9, jul. 2021. Disponível em: <http://dx.doi.org/10.33448/rsd-v10i8.16977>. Acesso em: 23 ago. 2021.
HARTLEY, Michael T.; et al. Digital media education and advocacy: addressing attitudes toward disability on college campuses. The Journal of Postsecondary Education and Disability, v. 29, n. 3, p. 239–247, ago. 2016. Disponível em: <https://eric.ed.gov/?id=EJ1123800>. Acesso em: 20 jan. 2021.
HUTCHEON, Emily J.; WOLBRING, Gregor. Voices of “disabled” post-secondary students: Examining higher education “disability” policy using an ableism lens. Journal of Diversity in Higher Education, v. 5, n. 1, p. 39-49, 2012. Disponível em: <https://doi.org/10.1037/a0027002>. Acesso em: 20 jan. 2021.
INSTITUTO NACIONAL DE ESTUDOS E PESQUISAS EDUCACIONAIS ANÍSIO TEIXEIRA. Sinopse estatística da Educação Superior 2018. Brasília: Inep. 2019. Disponível em: <http://download.inep.gov.br/informacoes_estatisticas/sinopses_estatisticas/sinopses_educacao_superior/sinopse_educacao_superior_2018.zip>. Acesso em: 28 ago. 2021.
INCKLE, Kay. Unreasonable adjustments: the additional unpaid labour of academics with disabilities. Disability & Society. London, v. 33, n. 8, p. 1372-1376, mai. 2018. Disponível em: <https://doi.org/10.1080/09687599.2018.1480263>. Acesso em: 20 jan. 2021.
JAIN, Neera R. Political disclosure: resisting ableism in medical education. Disability & Society. London, v. 35, n. 3, p. 389–412, Aug. 2019. Disponível em: <https://doi.org/10.1080/09687599.2019.1647149>. Acesso em: 20 jan. 2021.
LETT, Kayla; TAMAIAN, Andreea, & KLEST, Bridget. Impact of ableist microaggressions on university students with self-identified disabilities. Disability & Society. London, v. 35, n. 9, p. 1441–1456, 2020. Disponível em: <https://doi.org/10.1080/09687599.2019.1680344>. Acesso em: 20 jan. 2021.
LIVINGSTON, Kathy. When architecture disables: teaching undergraduates to perceive ableism in the built environment. Teaching Sociology. Washington, D.C., v. 28, n. 3, p. 182-191, jul. 2000. Disponível em: <https://doi.org/10.2307/1318988>. Acesso em: 20 jan. 2021.
KATTARI, Shanna K. Examining ableism in higher education through social dominance theory and social learning theory. Innovative Higher Education. v. 40, n. 5, p. 375–386, fev. 2015. Disponível em: <https://doi.org/10.1007/s10755-015-9320-0>. Acesso em: 20 jan. 2021.
KOREN, Emily R.; EVANS-EL, S. E. Xhey. Laissez-faire ableism in the academy: Contouring the map with graduate student perspectives. Critical Education. v. 11, n. 14, p. 14-30, ago. 2020. Disponível em: < https://ices.library.ubc.ca/index.php/criticaled/article/view/186519>. Acesso em: 20 jan. 2021.
KRUSE, Allison K.; OSWAL, Sushil K.S. Barriers to higher education for students with bipolar disorder: A critical social model perspective. Social Inclusion. v. 6, n. 4, 194–206, dez. 2018. Disponível em: <https://doi.org/10.17645/si.v6i4.1682>. Acesso em: 20 jan. 2021.
LYNCH, Shrehan; HILL, Joanne. ‘I had to pop a wheelie and pay extra attention in order not to fall:’ embodied experiences of two wheelchair tennis athletes transgressing ableist and gendered norms in disability sport and university spaces. Qualitative Research in Sport, Exercise and Health. p. 1-14, fev. 2020. Disponível em: <https://doi.org/10.1080/2159676x.2020.1731575>. Acesso em: 20 jan. 2021.
MADRIAGA, Manuel. “I avoid pubs and the student union like the plague”: Students with Asperger syndrome and their negotiation of university spaces. Children’s Geographies. v. 8, n. 1, p. 39-50, jan. 2010. Disponível em: <https://doi.org/10.1080/14733280903500166>. Acesso em: 20 jan. 2021.
MAZERA, Maiara Suelen; SCHNEIDER, Dulcinéia Ghizoni; PADILHA, Maria Itayra. Política de acesso, acessibilidade e inclusão educacional da pessoa com deficiência: revisão integrativa. Revista Enfermagem UERJ. Rio de Janeiro, v. 29, n. 1, 2021. Disponível em: <https://doi.org/10.12957/reuerj.2021.55486>. Acesso em: 02 nov. 2021.
MELLO, Anahi Guedes de. Deficiência, incapacidade e vulnerabilidade: do capacitismo ou a preeminência capacitista e biomédica do Comitê de Ética em Pesquisa da UFSC. Ciênc. saúde coletiva. Rio de Janeiro, v. 21, n. 10, p. 3265-3276, out. 2016. Disponível em: <https://doi.org/10.1590/1413-812320152110.07792016>. Acesso em: 02 ago. 2017.
MERCHANT, Wendy; et. al. The insider view: tackling disabling practices in higher education institutions. Higher Education. v. 80, n. 2 p. 273–287, 2020. Disponível em: <https://doi.org/10.1007/s10734-019-00479-0>. Acesso em: 22 jan 2021.
Volume
MORAES, Marcia. PesquisarCOM: política ontológica e deficiência visual. In: MORAES Marcia; KASTRUP Virginia (org.). Exercícios de ver e não ver: arte e pesquisa com pessoas com deficiência visual. Rio de Janeiro: Nau. 2010. p. 26-51.
NACHMAN, Brett Ranon; BROWN, Kirsten R. Omission and othering: constructing autism on community college websites. Community College Journal of Research and Practice. v. 44, n. 3, p. 211-223, jan. 2019. Disponível em: <https://doi.org/10.1080/10668926.2019.1565845>. Acesso em: 22 jan 2021.
ROJAS, Yennifer Paola Villa. Ammarantha Wass: trans-crooked experience of a teacher at the universidad pedagógica nacional (UPN). Nómadas. n. 52, p. 243–255, 2020. Disponível em: <https://doi.org/10.30578/nomadas.n52a14>. Acesso em: 22 jan 2021.
SINGER, Steven J.; BACON, Jessica K. Ableism in the academy: a series about disability oppression and resistance in higher education. Critical Education. v. 11, n. 14, p. 1-13, ago. 2020. Disponível em: < https://ices.library.ubc.ca/index.php/criticaled/article/view/186616>. Acesso em: 22 jan 2021.
TAYLOR, Sunaura. Beasts of Burden: Animal and Disability Liberation. New York: The New Press.
TAYLOR, Ashley; SHALLISH, Lauren. The logic of bio-meritocracy in the promotion of higher education equity. Disability & Society. London, 1–24, mai. 2019. Disponível em: <https://doi.org/10.1080/09687599.2019.1613962>. Acesso em: 23 jan 2021.
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