The influence of autism spectrum disorder (ASD) on sibling relationships: An integrative literature review
DOI:
https://doi.org/10.5902/1984686X92396Keywords:
Autism spectrum disorder, Siblings, RelationshipsAbstract
The family, especially parents and siblings, forms the core where the first interpersonal relationships are established, providing support and security. When a sibling is diagnosed with Autism Spectrum Disorder (ASD), significant changes occur in family dynamics to adjust to the specific needs of the child with ASD. These changes, which affect routines and family quality time, may influence behavior, socioemotional skills, and sibling relationships.
This study proposes to analyze, through an integrative literature review, the influence of ASD on sibling relationships. In this context, 18 studies published between 2015 and 2024 were identified, with methodological approaches focusing on qualitative, quantitative, and mixed-method research.The databases used were: Web of Science, Scopus, and Scielo. The search was carried out using keywords in European and Brazilian Portuguese and English, namely: Portuguese: PEA OR autism AND siblings AND relationships; siblings AND PEA; English: ASD OR autism spectrum disorder AND siblings; siblings AND ASD. The study concludes that, although relationships between siblings with and without ASD are challenging, they also foster the development of social and emotional skills. The importance of family and community support is emphasized to minimize negative impacts and strengthen family bonds.
Downloads
References
AMERICAN PSYCHIATRIC ASSOCIATION. Diagnostic and statistical manual of mental disorders. 5. ed. Arlington, VA: American Psychiatric Association, 2013. DOI: https://doi.org/10.1176/appi.books.9780890425596
BEN-ITZCHAK, Esther Ben - Itzchak; NACHSHON, Noa; ZACHOR, Ditza. Hav-ing siblings is associated with better social functioning in autism spectrum dis-order. Journal of Abnormal Child Psychology, 47, 921-931. 2018. DOI: https://doi.org/10.1007/s10802-018-0473-z
CARDOSO, Mayara Fernanda; FRANÇOZO, Maria de Fátima de Campos. Jovens irmãos de autistas: expectativas, sentimentos e convívio. Revista Saúde, 41(2), 87-98, 2015. Disponível em: https://doi.org/10.5902/2236583415338. DOI: https://doi.org/10.5902/2236583415338
COFFMAN, Marika. et al. Understanding of ASD by siblings is associated with Warmth and Hostility in the Sibling Relationship. Journal of Child and Family Studies, 30, 1577-1585, 2021. Disponível em: https://doi.org/10.1007/s10826-021-01945-z. DOI: https://doi.org/10.1007/s10826-021-01945-z
CORSANO, Paola. et al. Typically developing adolescents’ experience of grow-ing up with a brother with an autism spectrum disorder. Journal of Intellectual e Developmental Disability, 44(2), 151-161. 2016. DOI: https://doi.org/10.3109/13668250.2016.1226277
COSTA, Teresa Macedo; PEREIRA, Ana Paula Silva. The child with autism dis-order: The Perceptions of Siblings. Journal Support for Learning, 34(2), 194-210. 2019. DOI: https://doi.org/10.1111/1467-9604.12248
DANSBY, Rachel. et al. A phenomenological content analysis of online support seeking by siblings of people with autism. Journal of Family Studies, v. 23, n. 3, p. 345-357. 2017. DOI: https://doi.org/10.1080/08975353.2017.1395256
American Psychiatric Association. (2022). Diagnostic and statistical manual of mental disorders (5th ed., text rev.). DOI: https://doi.org/10.1176/appi.books.9780890425787
EGILSON, Snaefrídur. et al. Quality of life of high-functioning children and youth with autism spectrum disorder and typically developing peers: Self- and proxy-reports. Autism: The International Journal of Research and Practice, v. 21, n. 2, p. 133–141, 2017. DOI: https://doi.org/10.1177/1362361316630881 DOI: https://doi.org/10.1177/1362361316630881
FERRARI, Andressa; MENEZES, Christine; REGO, Vanessa. Revisão sistemática integrativa da literatura sobre prática no modelo psicossocial no campo infantojuvenil e suas respectivas famílias no Brasil. Research, Society and Development, 12(7), 2525-3409, 2023. Disponível em: https://doi.org/10.33448/rsd-v12i7.42541. DOI: https://doi.org/10.33448/rsd-v12i7.42541
GARRIDO, Duna; CARBALLO, Gloria; GARCIA-RETAMERO, Rocio. Siblings of children with autism spectrum disorders: Social support and family quality of life. Quality of Life Research, 29, 1193-1202. 2020. DOI: https://doi.org/10.1007/s11136-020-02429-1
GORJY, Rebecca; FIELDING, Angela; FALKMER, Marita. It’s better than it used to be: Perspectives of adolescent siblings of children with an autism spec-trum condition. Child and Family Social Work, 22(4), 1488-1496. 2017. DOI: https://doi.org/10.1111/cfs.12371
JONES, Emily. et al. When one sibling has autism: Adjustment and sibling rela-tionship. Journal of Child and Family Studies, 28, 1272-1282, 2019. Dis-ponível em: https://doi.org/10.1007/s10826-019-01374-z. DOI: https://doi.org/10.1007/s10826-019-01374-z
LAGHI, Fiorenzo. et al. Sibling relationships and family functioning in siblings of early adolescents, adolescents, and young adults with autism spectrum disor-der. Journal of Child and Family Studies, v. 27, n. 6, p. 1809-1820, 2018. DOI: https://doi.org/10.1007/s10826-017-0921-3
LASHEWICZ, Bonnie. Our Ultimate Fellow Travelers: A Pilot of Sibling Support for Adults with Developmental Disabilities. Issues in Mental Health Nursing, 39(8), 667-674, 2018. Disponível em: https://doi.org/10.1080/01612840.2018.1434843. DOI: https://doi.org/10.1080/01612840.2018.1434843
LEMOS, Emellyne; SALOMÃO, Nádia. Jovens com transtorno autista, suas mães e irmãos: Vivências familiares e modelo bioecológico. Psicologia Esco-lar e do Desenvolvimento, 38, p. 345-359. 2022. DOI: https://doi.org/10.1590/0102.3772e38312.pt
MOKOENA, Naledi; KERN, Anwynne. Experiences of siblings to children with autism spectrum disorder. Frontiers in Psychiatry, v. 13, p. 959117, 2022. DOI: 10.3389/fpsyt.2022.959117. DOI: https://doi.org/10.3389/fpsyt.2022.959117
ORSMOND, Gael; FULFORD, Daniel. Adult siblings who have a brother or sis-ter with autism: Between-family and within-family variations in sibling relation-ships. Journal of Autism and Developmental Disorders, v. 48, p. 4032-4047. 2018. DOI: https://doi.org/10.1007/s10803-018-3669-8
OTI-BOADI, M. et al. Experiences of siblings of individuals with autism spec-trum disorders. International Journal of Developmental Disabilities, v. 69, p. 35-47. 2023.
PAVLOPOULOU, Georgia; DIMITRIOU, Dagmara. I don't live with autism: I live with my sister. Sisters accounts on growing up with their preverbal autistic sib-lings. Research in Developmental Disabilities, 88(1), 1-15, 2019. Disponível em: https://doi.org/10.1016/j.ridd.2019.01.013. DOI: https://doi.org/10.1016/j.ridd.2019.01.013
PAVLOPOULOU, Georgia; DIMITROU, Dagmara. In their own words, in their own photos: Adolescent females siblinghood experiences, needs and perspec-tives growing up with a preverbal autistic brother or sister. Research in Devel-opmental Disabilities, 97, p. 1-14. 2020. DOI: https://doi.org/10.1016/j.ridd.2019.103556
RAWAT, Deeksha. et al. Role of sibling relationship in human development. Journal of Emerging Technologies and Innovative Research, [S. l.], v. 11, n. 2, p. a273–a287, fev. 2024.
REIS, Emily; SILVA, Ingrid; PORTES, João. Relações fraternais e autismo: Uma revisão integrativa da literatura. Periódicos Eletrônicos em Psicologia, 25(2), 114-128, 2021. Disponível em: http://pepsic.bvsalud.org/scielo.php?script=sci_arttextepid=S1679-494X2021000200009.
RIOSA, Priscilla. et al. How my life is unique: Sibling perspectives of autism. Research in Developmental Disabilities, v. 112, p. 1-11. 2022.
RUM, Yonat. et al. Sibling relationships in families of autistic and typical chil-dren: Similarities and differences in the perspectives of siblings and mothers. Journal of Autism and Developmental Disorders, 2024. Disponível em: https://doi.org/10.1007/s10803-023-06222-0. DOI: https://doi.org/10.1007/s10803-023-06222-0
SCHMEER, Alison; et al. Through the eyes of a child: Sibling perspectives on having a sibling diagnosed with autism. Research in Developmental Disabili-ties, 119, p. 104066. 2021. DOI: https://doi.org/10.1016/j.ridd.2021.104066
SHIVERS, Carolyn. Empathy and perceptions of their brother or sister among adolescent siblings of individuals with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, v. 49, n. 3, p. 1202-1213. 2019. DOI: https://doi.org/10.1016/j.ridd.2019.103451
SHIVERS, Carolyn; PLAVNICK, Joshua. Sibling involvement in interventions for individuals with autism spectrum disorders: A systematic review. Journal of Autism and Developmental Disorder, 45(3), 685-696. 2015. DOI: https://doi.org/10.1007/s10803-014-2222-7
SILVA, Emeline; LUCAS, Michele. Relação entre irmãos: A Percepção do Primogênito. Pensando Famílias, 24(1), 144-159, 2020.
SMITH, Julie. et al. Social participation experiences of families raising a young child with autism spectrum disorder: Implications for mental health and well-being. American Journal of Occupational Therapy, v. 76, n. 2, p. 7602205100p1–7602205100p9, 2023. https://doi.org/10.5014/ajot.2022.047050 DOI: https://doi.org/10.5014/ajot.2023.050156
TSAO, Ling-Ling; DAVENPORT, Randy; SCHMIEGE, Cynthia. Supporting sib-lings of children with autism spectrum disorders. Early Childhood Education Journal, v. 40, p. 47–54, 2011. DOI: https://doi.org/10.1007/s10643-011-0488-3
WALTON, Katherine; INGERSOLL, Brooke. Psychosocial adjustment and sib-ling relationships in siblings of children with autism spectrum disorders: Risk and protective factors. Journal of Autism and Developmental Disorders, 45, 2764-2778, 2015. Disponível em: https://doi.org/10.1007/s10803-015-2440-7. DOI: https://doi.org/10.1007/s10803-015-2440-7
WATSON, Lucy; HANNA, Paul; JONES, Christina. A systematic review of the experience of being a sibling of a child with an autism spectrum disorder. Clini-cal Child Psychology and Psychiatry, 26(3), 2021. Disponível em: https://doi.org/10.1177/13591045211007921. DOI: https://doi.org/10.1177/13591045211007921
Published
How to Cite
Issue
Section
License
Copyright (c) 2025 Special Education Magazine

This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.
Declaration of originality
We declare that all articles present in the journal Revista Educação Especial (UFSM) are originals and were not submitted for publishing on any other publication, as a whole or a fraction. We also declare that, after being published by Revista Educação Especial (UFSM), a paper will not be submitted to another journal within two years. After this time, our journal transfers the publishing rights to the authors, with a permit granted by the Editorial Council.
We also acknowledge that the originals’ submission to Revista Educação Especial (UFSM) implies on a transference of copyright for physical and digital publishing to the journal. In case of noncompliance, the violator will receive sanctions and penalties predicted by the Brazilian Copyright Protection Law (n. 9610, dated 19/02/98).


