Impacts of quarantine and / or social isolation on the routine of children with Autism Spectrum Disorder (ASD), and their families during the Covid-19
DOI:
https://doi.org/10.5902/1984644484519Keywords:
COVID-19 Pandemic, Autism Spectrum Disorder, Speech TherapyAbstract
During the COVID-19 pandemic, families around the world were faced with major impacts in relation to social interaction and new hygienic, family, therapeutic and professional habits, in addition to others that are present in their routines. Specifically, families responsible for children with Autism Spectrum Disorder (ASD), individuals who need extra support for their development and interaction. The objective of this research was to analyze parental perceptions about the impacts of quarantine and/or social isolation on the routine of children with Autism Spectrum Disorder. Family members of 30 children of both genders participated in this study, ranging in age from 2 to 9 years and 11 months of age, who received a multidisciplinary diagnosis of Autism Spectrum Disorder, according to DSM-5 criteria. For data collection, the Informed Consent Form, the DASS-21 Questionnaire together with its preform, and the Tracking Questionnaire for Research on the Impacts of Quarantine and/or Social Isolation on the Routine of Children with Autism Spectrum Disorder were used. , and their families during the Covid-19 pandemic, a questionnaire designed especially for this research. Results: After statistical analysis of the data from the applied protocols, a negative impact on the present results was observed according to the parents' perception. Conclusion: Therefore, it is concluded that the COVID-19 pandemic, according to parents' perception, had negative impacts on the routine of children with ASD and their respective families, caused mainly by social isolation and its consequences.
References
STEINMAN, G., MANKUTA, D. Biologia molecular da etiologia do autismo - um mecanismo alternativo. Med Hypoth, 130 (2019) , Artigo 109272
FORTES, Clarisse Pereira Dias Drumond; VIEIRA, Fernanda; MACHADO, Laís de Carvalho. Análise comparativa entre a saúde mental de responsáveis por pessoas com Transtorno do Espectro Autista e por crianças sem Transtorno do Espectro Autista na pandemia covid-19. Revista Residência Pediátrica, V. 11, n. 1, 2021.
SHIGEMURA, Jun et al. Public responses to the novel 2019 coronavirus (2019‐nCoV) in Japan: Mental health consequences and target populations. Psychiatry and clinical neurosciences, v. 74, n. 4, p. 281, 2020.
GIUSEPPE, JR.; DAVID RD.;HEATHER, JW. Transtorno do espectro autista. In: Kliegman RM, Stanton BF, St Geme JW, Schor NF, eds. Nelson Tratado de Pediatria. 20th ed. Rio de Janeiro: Elsevier; 2018. v. 1-2, p. 175-9.
CARVALHO, Francidalma Soares Souza et al. Coping e estresse familiar e enfrentamento na perspectiva do transtorno do espectro do autismo. V. 7, n. 1. Rev Cient Sena Aires, 2018.
Ministério da Saúde (BR). Centro de Estudos e Pesquisas em Emergências e Desastres em Saúde, Atenção Psicossocial e Saúde Mental. Crianças na pandemia COVID-19. Brasília (DF): Ministério da Saúde; 2020.
OLIVEIRA, Rogério Nazário et al. O autismo no contexto familiar. Brazilian Journal of Development J Dev, v. 6, n. 1, 2020.
BARBOSA, Milene Rossi Pereira. Suporte social e qualidade de vida em famílias de crianças do espectro autístico [dissertação]. São Paulo (SP): Universidade de São Paulo, Faculdade de Medicina, Departamento de Fisioterapia, Fonoaudiologia e Terapia Ocupacional; 2010.
ZANOTTO, Luana; SOMMERHALDER, Aline; PENTINI, Anna Aluffi. A reorganização do convívio familiar com crianças em pandemia pela Covid-19 no Brasil. v.3, 2020.
CASSIDY, Sarah A. et al. An expert discussion on autism in the COVID-19 pandemic. Autism in Adulthood, v. 2, n. 2, p. 106-117, 2020.
LIMA, Claudio Márcio Amaral de Oliveira. Informações sobre o novo coronavírus (COVID-19). Radiologia Brasileira, v. 53, p. V-VI, 2020.
ALHUZIMI, Tatal. Stress and emotional wellbeing of parents due to change in routine for children with Autism Spectrum Disorder (ASD) at home during COVID-19 pandemic in Saudi Arabia. Research in Developmental Disabilities, v. 108, p. 103822, 2021.
BELLOMO, Tiffany R. et al. The impact of the COVID-19 pandemic on children with autism spectrum disorders. Journal of Pediatric Rehabilitation Medicine, n. Preprint, p. 1-6, 2020.
MACIZO, P. SORIANO, M. F.; PAREDES, N. Phonological and visuospatial working memory in autism spectrum disorders. Journal of autism and developmental disorders, v. 46, n. 9, p. 2956-2967, 2016.
BARRADAS, N.; MARQUES, C. et.al. Risco e perigo na pandemia,novos riscos, velhos desafios. Reflexões em torno da Covid-19: famílias, crianças e jovens em risco. Thoughts on covid-19: families, children and youth risk, p.4, 2021.
SANTOS, Maria do Carmo. Problemas de saúde mental em crianças e adolescentes: Identificar, avaliar e intervir. 2º. ed. Editora Sílabo, 2015.
SMILE, Sharon C. Supporting children with autism spectrum disorder in the face of the COVID-19 pandemic. CMAJ, v. 192, n. 21, p. E587-E587, 2020.
BARBOSA, Leopoldo Nelson Fernandes et al. Frequência de sintomas de ansiedade, depressão e estresse em brasileiros na pandemia COVID-19. Revista Brasileira de Saúde Materno Infantil, v. 21, p. 413-419, 2021.
MUTLUER, Tuba; DOENYAS, Ceymi; GENC, Herdem Aslan. Behavioral implications of the Covid-19 process for Autism Spectrum Disorder, and individuals' comprehension of and reactions to the pandemic conditions. Frontiers in psychiatry, v. 11, 2020.
BARROS, Marilisa Berti de Azevedo et al. Relato de tristeza/depressão, nervosismo/ansiedade e problemas de sono na população adulta brasileira durante a pandemia de COVID-19. Epidemiologia e Serviços de Saúde, v. 29, p. e2020427, 2020.
AYDOGDU, Ana Luiza Ferreira. Saúde mental das crianças durante a pandemia causada pelo novo coronavírus: revisão integrativa/Children’s mental health during the pandemic caused by the new coronavírus: integrative review/Salud mental de los niños durante la pandemia causada por el nuevo coronavirus: revisión integradora. JOURNAL HEALTH NPEPS, v. 5, n. 2, 2020.
DA SILVA, Thamires Marino; COUTO, Leila Maria Ferreira; BAPTISTA, Makilim Nunes. Níveis de depressão, ansiedade e estresse em familiares cuidadores de crianças com e sem diagnóstico de TEA durante a pandemia de COVID-19. Contextos Clínicos, v. 14, n. 3, 2021.
BAWEJA, Raman et al. COVID-19 pandemic and impact on patients with autism spectrum disorder. Journal of Autism and Developmental Disorders, p. 1-10, 2021.
LATZER, Itay Tokatly; LEITNER, Yael; KARNIELI-MILLER, Orit. Core experiences of parents of children with autism during the COVID-19 pandemic lockdown. Autism, v. 25, n. 4, p. 1047-1059, 2021.
REIS, José. Palavras para além da pandemia: cem lados de uma crise. Coimbra, Centro de Estudos Sociais da Universidade de Coimbra, p.120, 2020.
MARCIANO, Adriana Regina Ferreira; SCHEUER, Cláudia Ines. Quality of life in siblings of autistic patients. Brazilian Journal of Psychiatry, v. 27, p. 67-69, 2005.
GRINBERGAS, Daniella. Pequenos confinados: como o isolamento impacta a saúde das crianças. Veja Saúde, 2020.
VISANI, Paola; RABELLO, Silvana. Considerações sobre o diagnóstico precoce na clínica do autismo e das psicoses infantis. Revista Latinoamericana de Psicopatologia Fundamental, v. 15, n. 2, 2012.
FAMITAFRESHI, Hamidreza; KARIMIAN, Morteza. Overview of the recent advances in pathophysiology and treatment for autism. CNS & Neurological Disorders-Drug Targets (Formerly Current Drug Targets-CNS & Neurological Disorders), v. 17, n. 8, p. 590-594, 2018.
CHASTE, Pauline; LEBOYER, Marion. Autism risk factors: genes, environment, and gene-environment interactions. Dialogues in clinical neuroscience, v. 14, n. 3, p. 281, 2012.
MCPARTLAND, James; VOLKMAR, Fred R. Autism and related disorders. Handbook of clinical neurology, v. 106, p. 407-418, 2012.
VIANA, Beatriz Alves; FURTADO, Luis Achilles Rodrigo; VIEIRA, Camilla Araújo Lopes. Invenção e estabilização: uma experiência com crianças autistas em dispositivos de Saúde Mental. Revista Latinoamericana de Psicopatologia Fundamental, 2020.
HOURING, Jac den. Stepping out of isolation: Autistic people and COVID-19. Autism in Adulthood, 2020.
FERNANDES, Amanda Dourado Souza Akahosi et al. Desafios cotidianos e possibilidades de cuidado às crianças e adolescentes com Transtorno do Espectro Autista (TEA) frente à COVID-19. Cadernos Brasileiros de Terapia Ocupacional/Brazilian Journal of Occupational Therapy, 2020.
ERSOY, Kübra et al. The comparison of impact of health anxiety on dispositional hope and psychological well-being of mothers who have children diagnosed with autism and mothers who have normal children, in Covid-19 Pandemic. Sosyal Bilimler Araştırma Dergisi, 9 (2), 117-126, 2020.
LIMA, Rossano Cabral. Distanciamento e isolamento social pela Covid-19 no Brasil: impactos na saúde mental. Physis: Revista de Saúde Coletiva, v. 30, n. 2, 2020.
GIVIGI, Rosana Carla do Nascimento et al. Efeitos do isolamento na pandemia por COVID-19 no comportamento de crianças e adolescentes com autismo. Revista Latinoamericana de Psicopatologia Fundamental [online]. V. 24, n. 03, 2021.
CHIESA, Valentina et al. Pandemia de COVID-19: impacto na saúde de ficar em casa, distanciamento social e medidas de 'bloqueio' - uma revisão sistemática de revisões sistemáticas. Journal of Public Health, Volume 43, Edição 3, setembro de 2021.
VITA, Gabriela Gomes Prado de Almeida; JORGE, Tatiane Martins. Impact of deprivation of school physical space on child development during the pandemic: the perception of preschoolers’ families. Revista CEFAC [online]. V. 25, n. 2, 2023.
GASTAUD, Marina Bento. Como cuidar da saúde mental das crianças em quarentena? Pensamento Contemporâneo Psicanálise e Transdisciplinaridade, V. 2, n.1, Dez 2020.
PESCH, Megan H. et al. Reflections on Children with Developmental and Behavioral Challenges Who Are Thriving While Sheltering in Place. Journal of developmental and behavioral pediatrics : JDBP, 41(7), 506–507, 2020.
MIRANDA, Ana et al. Parenting Stress in Mothers of Children With Autism Without Intellectual Disability. Mediation of Behavioral Problems and Coping Strategies. Frontiers in psychology, 10, 464, 2019.
GLASHEEN, Cristie et al. A systematic review of the effects of postnatal maternal anxiety on children. Archives of women's mental health, 13(1), 61–74, 2010.
FONTANESI, Lilybeth et al. The effect of the COVID-19 lockdown on parents: A call to adopt urgent measures. Psychological trauma : theory, research, practice and policy, 12(S1), S79–S81, 2020.
KOWANDA, Michelle et al. Disponibilidade de serviços e carga do cuidador: apoiando indivíduos com doenças neurogenéticas durante a pandemia de COVID-19. Jornal de Neurologia Infantil. 36(9):760-767, 2021.
SILVA, Wenderson Costa et al. Explorando os impactos na saúde mental de crianças durante a pandemia de Covid-19., International Journal of Development Research, 11, (04), 2021.
POLANCZYK, Guilherme V. O custo da pandemia sobre a saúde mental de crianças e adolescentes. Jornal da USP, 2020.
MALTA, Deborah Carvalho et al. A pandemia da COVID-19 e as mudanças no estilo de vida dos brasileiros adultos: um estudo transversal, 2020. Epidemiologia e Serviços de Saúde [online]. V. 29, n. 4 Epub 25 Set 2020.
BERTAGLIA, Bárbara. Covid-19 e autismo. Autismo e realidade: TEA no dia-a-dia, 2022.
OLIARI, Anadir Luiza Thomé; FEIJÓ, Marianne Ramos. Terapia online e fortalecimento de vínculos em tempos de pandemia. CadernoS de PsicologiaS, Curitiba, n. 1, 2020.
MORETTI, Sarah & Neta, Maria & Batista, Eraldo. Nossas Vidas em Meio à Pandemia da COVID -19: Incertezas e Medos Sociais. Rev Enfermagem e Saúde Coletiva. 4(2). 32-41, 2020.
Published
How to Cite
Issue
Section
License
Copyright (c) 2025 Education
![Creative Commons License](http://i.creativecommons.org/l/by-nc/4.0/88x31.png)
This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.
Declaration of originality
We declare that all articles present in the journal Educação (UFSM) are originals and were not submitted for publishing on any other publication, as a whole or a fraction. We also declare that, after being published by Educação (UFSM), a paper will not be submitted to another journal within two years. After this time, our journal transfers the publishing rights to the authors, with a permit granted by the Editorial Council.
We also acknowledge that the originals’ submission to Educação (UFSM) implies on a transference of copyright for physical and digital publishing to the journal. In case of noncompliance, the violator will receive sanctions and penalties predicted by the Brazilian Copyright Protection Law (n. 9610, dated 19/02/98).
Attribution 4.0 International (CC BY 4.0)
This license lets others remix, transform, and build upon the material for any purpose, even commercially, and copy and redistribute the material in any medium or format.
This work is licensed under a Creative Commons Attribution 4.0 International (CC BY 4.0)