Experiences of family caregivers of dependent older people in the care process
DOI:
https://doi.org/10.5902/2179769274117Keywords:
Caregivers, Caregiver Burden, Family, Aged, PerceptionAbstract
Objective: to understand the experiences of family caregivers of the older people in relation to care. Method: a descriptive study with a qualitative approach, conducted in a city in southern Brazil with 14 family caregivers of dependent older people. The interviews carried out between October and November 2022 were audio recorded, fully transcribed and submitted to Content Analysis, a thematic modality. Results: Family members take care unexpectedly. Although it is little shared, the family, especially in the early days, reorganizes to support the older adult. With the continued experience of home care, family members perceive the burden, however, they are able to (re)signify their role and demonstrate that the experience is a source of learning and retribution. Conclusion: Health professionals should be attentive to the way in which the process of caring for the older people is established in the lives of family members and develop interventions that support them, reduce overload and expand their strengths.
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References
Instituto Brasileiro de Geografia e Estatística (IBGE). Esperança de vida ao nascer 2022. Rio de Janeiro (RJ): IBGE; 2022 [acesso em 2023 jan 12]. Disponível em: https://sidra.ibge.gov.br/tabela/7362#resultado
Scwarcwald CL, Stopa SR, Malta DC. Status of the main noncommunicable diseases and lifestyles in the Brazilian population: Brazilian National Health Survey, 2013 and 2019. Cad Saúde Pública. 2022;38(Supp 1):51-4. doi: 10.1590/0102-311xpt276021
Barreto MS, Carreira L, Marcon SS. Envelhecimento populacional e doenças crônicas: Reflexões sobre os desafios para o Sistema de Saúde Pública. Rev Kairós. 2015;18(1):325-39. doi: 10.23925/2176-901X.2015v18i1p325-339
BRASIL. Lei nº 8.842. Dispõe sobre a Política Nacional do Idoso, cria o Conselho Nacional do Idoso e dá outras providências. Brasília (DF): Presidência da República, 1994. Disponível em: https://www.planalto.gov.br/ccivil_03/leis/l8842.htm. Acesso em: 10 jan. 2023.
BRASIL. Lei nº 10.741. Dispõe sobre o Estatuto do Idoso e dá outras providências. Brasília (DF): Presidência da República, 2003. Disponível em: https://www.planalto.gov.br/ccivil_03/leis/2003/l10.741.htm. Acesso em: 10 jan. 2023.
Viesenteiner JL. O conceito de vivência (Erlebnis) em Nietzsche: gênese, significado e recepção. Kriterion. 2013;54(127):141-55. doi: 10.1590/S0100-512X2013000100008
Mendes PN, Figueiredo ML, Santos AMR, Fernandes MA, Fonseca RSB. Physical, emotional and social burden of elderly patients’ informal caregivers. Acta Paul Enferm. 2019;32(1):87-94. doi: 10.1590/1982-0194201900012
Cunha JVB, Reiners AAO, Azevedo RCS, Cardoso JDC, Cunha CRT, Silva KM. Funcionamento de famílias com idosos totalmente dependentes. Cienc Cuid Saúde. 2019;18(2):e48825. doi: 10.4025/ciencuidsaude.v18i2.48825
Monteiro JKM, Sá SPC, Bezerra DRC. Sobrecarga e qualidade de vida do cuidador familiar do idoso da quarta idade. Res Soc Dev. 2021;10(10):e478101018931. doi: 10.33448/rsd-v10i10.18931
Alvarez AM, Sandri JVA. Population aging and the Nursing commitment. Rev Bras Enferm. 2018;71(suppl 2):770-01. doi: 10.1590/0034-7167-201871Sup201
Eloia SC, Oliveira EN, Lopes MVO, Parente JRF, Eloia SMC, Lima DS. Family burden among caregivers of people with mental disorders: an analysis of health services. Cienc Saúde Colet. 2018;23(9):3001-11. doi: 10.1590/1413-81232018239.18252016.
Bernabéu-Álvarez C, Faus-Sanoguera M, Lima-Serrano M, Lima-Rodríguez JS. Revisión sistemática: influencia de los Grupos de Ayuda Mutua sobre cuidadores familiares. Enferm Glob. 2020;19(58):560-74. doi: 10.6018/eglobal.392181
Dadalto EV, Cavalcante FG. The place of family caregivers for older adults with Alzheimer’s disease: a literature review in Brazil and the United States. Cienc Saúde Colet. 2021;26(1):147-57. doi: 10.1590/1413-81232020261.38482020.
Morse J. The changing face of qualitative inquiry. Int J Qualit Method. 2020;19:1-7. doi: 10.1177/1609406920909938
Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19(6):349-57. doi: 10.1093/intqhc/mzm042
Soares MFN, Maia LC, Costa SM, Caldeira AP. Dependência Funcional em idosos assistidos por equipes da Estratégia Saúde da Família. Rev Bras Geriatr Gerontol. 2019;22(5):e190147. doi: 10.1590/1981-22562019022.190147
Bardin L. Análise de conteúdo. São Paulo: Edições 70; 2016.
Velloso ISC, Tizzoni JS. Critérios e estratégias de qualidade e rigor na pesquisa qualitativa. Cienc Enferm. 2020;26(28):1-10. doi: 10.29393/CE26-22CEIS20022.
Almeida NC, Dalla-Vechia ADR, Montini LLC, Lima CM. Narrativas sobre conviver com um idoso dependente: perspectiva do cuidador familiar. Rev Kairós. 2020;23(3):199-214. doi: 10.23925/2176-901X.2020v23i3p199-214
Fisher MMJB, Barreto MS, Marcon SS, Batista VC, Marquete VF, Souza RR, et al. Caring for a family member with stroke sequelae: the first days at home after hospital discharge. REME Rev Min Enferm. 2021;25:e-1385. doi: 10.5935/1415.2762.20210033
Mattos EBT, Kovács MJ. Alzheimer’s disease: the unique experience of family caregivers. Psicol USP. 2020;31:e180023. doi: 10.1590/0103-6564e180023
Kongkar R, Pinyopasakul W, Pongthavornkamol K, Dajpratham P, Orathai P. The determinants of quality of life in Thai family caregivers of stroke survivors. Siriraj Med J [Internet]. 2019 [cited 2023 Jan 10];71(4):290-6. Available from: https://he02.tci-thaijo.org/index.php/sirirajmedj/article/view/205219/142863
Pérez-Cruz M, Parra-Anguita L, López-Martínez C, Moreno-Cámara S, Del-Pino-Casado R. Coping and anxiety in caregivers of dependent older adult relatives. Int J Environ Res Public Health. 2019;16(9):1651. doi: 10.3390/ijerph16091651
Silva MS, Beuter M, Benetti ERR, Bruinsma JL, Donati L, Girardon-Perlini NMO. Situações vivenciadas por cuidadores familiares de idosos na atenção domiciliar. Rev Enferm UFSM. 2019;9:e10. doi: 10.5902/2179769232528
Silva ALO, Santos BA, Santos CTL, Santos VSO, Oliveira JKP, Santos JS, et al. Impacts on the health and quality of life of caregivers and family members of individuals with Alzheimer’s disease: integrative review. Res Soc Dev. 2022;11(9):e46211932245. doi: 10.33448/rsd-v11i9.32245
Palma DA, Magalhães AS, Monteiro MC. Cuidadoras familiares de idosos dependentes: convivendo com perdas. Rev Kairós. 2019;22(4):395-415. doi: 10.23925/2176-901X.2019v22i4p395-415
Garcia GMF, Imoto PH, Bernuci MP, Yamagucchi MU, Massuda EM. Sobrecarga de cuidadores informais de idosos. Rev Interdiscip Estud Saúde. 2020;9(1):115-30. doi: 10.33362/ries.v9i1.1724
Lindeza P, Rodrigues M, Costa J, Guerreiro M, Rosa MM. Impact of dementia on informal care: a systematic review of family caregivers’ perceptions. BMJ Supportive Palliat Care. 2020;15(6). doi: 10.1136/bmjspcare-2020-002242
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