Children with special health care needs in a pediatric emergency service: a cross-sectional study

Authors

DOI:

https://doi.org/10.5902/2179769269299

Keywords:

Child health, Pediatric nursing, Chronic disease, Health profile, Emergency service, hospital

Abstract

Objectives: to screen children with special health needs in a pediatric emergency service and analyze their care demands. Method: a cross-sectional study, carried out from March to June 2019, in a children's emergency hospital service, in the municipality of Rio das Ostras, Rio de Janeiro, Brazil. The Brazilian version of the Children with Special Health Care Needs Screener (CSHCN Screener®) and the instrument characterizing demands with family caregivers of children were applied. Descriptive statistics were used. Results: children with special health needs corresponded to 5.1% of the 235 families screened. The main domains of health needs were greater use of services and dependence on medicines.  Among the care demands, the modified usual care stood out. Bottom line: the six care demands were identified among the screened children. The adoption of the CSHCN Screener® is recommended to increase visibility and indicate assistance strategies for this population group.

Downloads

Download data is not yet available.

Author Biographies

Mayara Pacheco da Conceição Bastos, Universidade Federal Fluminense

Enfermeira. Universidade Federal Fluminense, Rio das Ostras, RJ, Brasil.

Andressa Silva Torres dos Santos, Universidade de São Paulo

Enfermeira. Doutoranda em Ciências. Universidade de São Paulo, Ribeirão Preto, SP, Brasil.

Beatriz Cabral Ledo, Universidade Federal Fluminense

Enfermeira. Universidade Federal Fluminense, Rio das Ostras, RJ, Brasil.

Juliana Rezende Montenegro Medeiros de Moraes, Universidade Federal Fluminense

Enfermeira. Doutora em Enfermagem. Universidade Federal do Rio de Janeiro, Rio de Janeiro, RJ, Brasil.

Ivone Evangelista Cabral, Universidade Federal do Rio de Janeiro

Enfermeira. Doutora em Enfermagem. Universidade Federal do Rio de Janeiro, Programa de Pós-graduação da Escola de Enfermagem Anna Nery; Universidade do Estado do Rio de Janeiro, Faculdade de Enfermagem. Rio de Janeiro, RJ, Brasil.

Fernanda Garcia Bezerra Góes, Universidade Federal Fluminense

Enfermeira. Doutora em Enfermagem. Universidade Federal Fluminense, Rio das Ostras, RJ, Brasil.

References

Cianci P, D'Apolito V, Moretti A, Barbagallo M, Paci S, Carbone MT, et al. Children with special health care needs attending emergency department in Italy: analysis of 3479 cases. Ital J Pediatr. 2020;46(1):173. doi: 10.1186/s13052-020-00937-x

Góes FGB, Cabral IE. Discourses on discharge care for children with special healthcare needs. Rev Bras Enferm. 2017;70(1):154-61. doi: 10.1590/0034-7167-2016-0248

Huang L, Freed GL, Dalziel K. Children with special health care needs: how special are their health care needs? Acad Pediatr. 2020;20(8):1109-15. doi: 10.1016/j.acap.2020.01.007

Arrué AM, Neves ET, Magnago TSBS, Cabral IE, Gama SGN, Hökerberg YHM. Translation and adaptation of the children with special health care needs screener to Brazilian Portuguese. Cad Saúde Pública. 2016;32(6):1-7. doi: 10.1590/0102-11X00130215

Warden C, Yun K, Semere W. Using the children with special health care needs screener with immigrant families: an analysis of the national survey of children’s health. J Immigr Minor Health. 2018;21(1):189-97. doi: 10.1007/s10903-018-0719-4

Wahdan IH, El-Nimr NA. Identifying children with special health care needs in Alexandria, Egypt. Pediatric Res. 2018;84(1):57-61. doi: 10.1038/s41390-018-0008x

Carvalho CCO, Pimentel TGP, Cabral IE. Child with special health needs at one hospital of the Brazilian unified health system. Rev Pesq Cuid Fundam. 2021;13:1296-302. doi: 10.9789/2175-5361.rpcfo.v13.9756

Davis AM, McFadden SE, Patterson BL, Barkin SL. Strategies to identify and stratify children with special health care needs in outpatient general pediatrics settings. Matern Child Health J. 2015; 19(6):1384-92. doi: 10.1007/s10995-014-1644-3

Guo MBA, Chock G, Parlin LBA, Yamashiroya VMD, Rudoy RMD. Utilization of children with special health care needs (CSHCN) Screener© by O‘ahu’s pediatricians. Hawai MED J [Internet]. 2013 [cited 2021 Apr 30];72(5):162-6. Available from: https://www.ncbi.nlm.nih.gov/pubmed/23795320

Connor OM, Rosemana SMC, Quach J, Kvansh A, Goldef S. Special health care needs across the school and family contexts: implications for service utilization. Acad Pediatr. 2017;17(6):687-93. doi: 10.1016/j.acap.2017.02.012

Blackburn CM, Spencer NJ, Read JM. Prevalence of childhood disability and the characteristics and circumstances of disabled children in the UK: secondary analysis of the Family Resources Survey. BMC Pediatr. 2010;10(21):1-28. doi: 10.1186/1471-2431-10-21

Mohler-Kuo M, Dey M. A comparison of health-related quality of life between children with versus without special health care needs, and children requiring versus not requiring psychiatric services. Qual Life Res. 2012;21(9):1577-86. doi: 10.1007/s11136-011- 0078-2

Okido ACC, Neves ET, Cavicchioli GN, Jantsch LB, Pereira FP, Lima RAG. Factors associated with family risk of children with special health care needs. Rev Esc Enferm USP. 2018;52:e03377. doi: 10.1590/S1980-220X2017048703377

Hoffmann I, Diefenbach C, Gräf C, König J, Schmidt MF, Schnick-Volmer K, et al. Chronic health conditions and school performance in first graders: a prospective cohort study. PLoS One. 2018;13(3):e0194846. doi: 10.1371/journal.pone.0194846

Góes FGB, Cabral IE. Children with health special needs and his care demands. Rev Pesq Cuid Fundam [Internet]. 2010 [cited 2021 Apr 30];2(2):889-901. Available from: http://www.seer.unirio.br/index.php/cuidadofundamental/article/view/579/pdf_22

Barreiros CFC, Gomes MASM, Mendes Júnior SCS. Children with special needs in health: challenges of the single health system in the 21st century. Rev Bras Enferm. 2020;73(Suppl 4):e20190037. doi: 10.1590/0034-7167-2019-0037

Mario DN, Rigo L, Boclin KLS, Malvestio LMM, Anziliero D, Horta BL, et al. Qualidade do pré-natal no Brasil: Pesquisa Nacional de Saúde 2013. Ciênc Saúde Colet. 2019;24(3):1223-32. doi: 10.1590/1413-81232018243.13122017

Gonçalves MKS, Cardoso MD, Lima RAF, Oliveira CM, Bonfim CV. Prevalence and factors associated with congenital malformations in live births. Acta Paul Enferm. 2021;34:eAPE00852. doi: 10.37689/acta-ape/2021AO00852

Bossa PMA, Pacheco STA, Araújo BBM, Nunes MDR, Silva LF, Cardoso JMRM. Home care challenges facing families of children using a tracheostomy cannula. Rev Enferm UERJ. 2019; 27:e43335. doi: 10.12957/reuerj.2019.43335

Rossetto V, Toso BRGO, Rodrigues RM, Viera CS, Neves ET. Development care for children with special health needs in home care at Paraná - Brazil. Esc Anna Nery Rev Enferm. 2019;23(1):e20180067. doi: 10.1590/2177-9465-EAN-2018-0067

Góes FGB, Cabral IE. Hospital discharge in children with special health care needs and its different dimensions. Rev Enferm UERJ. 2017;25:e18684. doi: 10.12957/reuerj.2017.18684

Matiz LA, Kostacos C, Robbins-Milne L, Chang SJ, Rausch JC, Tariq A. Integrating nurse care managers in the medical home of children with special health care needs to improve their care coordination and impact health care utilization. J Pediatr Nurs. 2021;59:32-6. doi: 10.1016/j.pedn.2020.12.018

Samuels C, Harris T, Gonzales T, Mosquera RA. The case for the use of nurse practitioners in the care of children with medical complexity. Children (Basel). 2017;4(4):24. doi: 10.3390/children4040024

Neves ET, Okido ACC, Buboltz FL, Santos RP, Lima RAG. Accessibility of children with special health needs to the health care network. Rev Bras Enferm. 2019;72(Suppl 3):65-71. doi: 10.1590/0034-7167-2017-0899

Bertoldo CS, Silva JH, Silveira A, Ribeiro AC, Kegler JJ, Neves ET. Characterization of adolescents with diabetes mellitus attended in ambulatory of teaching hospital. Rev Enferm UFSM. 2019;9:e55. doi: 10.5902/2179769232870

Published

2022-06-28 — Updated on 2022-08-08

Versions

How to Cite

Bastos, M. P. da C., Santos, A. S. T. dos, Ledo, B. C., Moraes, J. R. M. M. de, Cabral, I. E., & Góes, F. G. B. (2022). Children with special health care needs in a pediatric emergency service: a cross-sectional study. Revista De Enfermagem Da UFSM, 12, e24. https://doi.org/10.5902/2179769269299 (Original work published June 28, 2022)

Issue

Section

Artigos Originais

Most read articles by the same author(s)