Mothers' experience on the therapeutic itinerary of children with orofacial cleft: a clinical-qualitative study

Authors

DOI:

https://doi.org/10.5902/2179769294437

Keywords:

Health Services Accessibility, Cleft Lip, Cleft palate, Therapeutic Itinerary, Mothers

Abstract

Objective: to understand the experiences of mothers of children with orofacial cleft during the search for health care in the context of the Unified Health System. Method: qualitative study, based on the clinical-qualitative method grounded on family resilience from a systemic perspective. Mothers of children with orofacial clefts attended at an institution in southern Brazil participated. Data collection took place in August 2023, through semi-structured interviews. The narratives were submitted to qualitative content analysis. Results: eight mothers participated, with the construction of two categories that emerged from the data: the trajectory in the face of the diagnosis of cleft and the construction of resilience and the challenges and resilience of mothers in the therapeutic itinerary of children with orofacial cleft. Conclusion: the mothers revealed challenges in the therapeutic itinerary of children with orofacial clefts. Family resilience favored coping with adversity, subsidizing health practices more aligned with the principles of the Unified Health System.

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Author Biographies

Camila Moraes Garollo Piran, Universidade Estadual de Maringá

Enfermeira, Mestra em Enfermagem, Universidade Estadual de Maringá, Maringá, Paraná, Brasil - https://orcid.org/0000-0002-9111-9992, camilagarollo@gmail.com, http://lattes.cnpq.br/6523429023411583

Maricy Morbin Torres, Universidade Estadual de Maringá

Enfermeira, Doutora em Enfermagem, Universidade Estadual de Maringá, Maringá, Paraná, Brasil - https://orcid.org/0000-0002-2637-5754, mmtorres@uem.br, http://lattes.cnpq.br/9850994190799083

Mariana Martire Mori, Universidade Estadual de Maringá

Enfermeira, Universidade Estadual de Maringá, Maringá, Paraná, Brasil - https://orcid.org/0000-0003-1744-3580, mari_mmori@hotmail.com, http://lattes.cnpq.br/1729395434104260

Allana Martins Vitorino, Universidade Estadual de Maringá

Enfermeira, Universidade Estadual de Maringá, Maringá, Paraná, Brasil - https://orcid.org/0000-0002-9818-4818, allanamvitorino@hotmail.com, http://lattes.cnpq.br/4300612509335467

Cremilde Aparecida Trindade Radovanovic, Universidade Estadual de Maringá

Enfermeira, Doutora em Enfermagem, Universidade Estadual de Maringá, Maringá, Paraná, Brasil - https://orcid.org/0000-0001-9825-3062, catradovanovic@uem.br, http://lattes.cnpq.br/7764254332161773

Rodrigo Almeida Bastos, Universidade de São Paulo

Enfermeiro, Doutor em Tocoginecologia, Escola de Enfermagem da Universidade de São Paulo, São Paulo, São Paulo, Brasil - https://orcid.org/0000-0002-6159-8048, almeidabastos.rodrigo@gmail.com, http://lattes.cnpq.br/6839471288346696

Sonia Silva Marcon, Universidade Estadual de Maringá

Enfermeira, Doutora em Enfermagem, Universidade Estadual de Maringá, Maringá, Paraná, Brasil - https://orcid.org/0000-0002-6607-362X, soniasilva.marcon@gmail.com, http://lattes.cnpq.br/5341266147978209

Marcela Demitto Furtado, Universidade Estadual de Maringá

Enfermeira, Doutora em Enfermagem, Universidade Estadual de Maringá, Maringá, Paraná, Brasil - https://orcid.org/0000-0003-1427-4478, mdfurtado@uem.br, http://lattes.cnpq.br/8007832036059597

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Published

2026-07-30

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